If you have #SevereME, like me, you are valuable however and whenever you can show up

I’ve hosted monthly support group meetings for Iowa #dysautonomia and #EDS patients for years, it takes a lot, can’t always do it, but everyone is grateful for these spaces no one else provides

I've had enough. Time to be that bitch!

#POTS #MedicalGaslighting #dysautonomia #hEDS

For folks with chronic conditions that lead to having problems with being cold in bed at night (chills, difficulty with temp regulation, etc), something that has really been helping me is sleeping inside my sleeping bag liner. It's a thin fabric tube that one would normally put inside their sleeping bag to stay extra toasty.

Mine is twenty years old and from the brand Sea to Summit. It's stretchy, so it's not binding. But it's very warm. I use it in bed, just crawl in and sleep normally. It's been a big help recently with the winter temps kicking in.

#ChronicIllness #Fibromyalgia #MECFS #dysautonomia

From Japan:

" #COVID19 infection shows significant association with increased autonomic dysfunction pharmacotherapy initiation, with a 36% rise in prescriptions over 8 months."

https://www.tandfonline.com/doi/abs/10.1080/07853890.2026.2618323

Screenshot from Science for ME update

#LongCovid #PASC #dysautonomia #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus #COVID #COVID_19 #COVIDー19 #SARSCoV2

Wish me luck.

It was 34°Celsius today.

It’s going to be 44° tomorrow with a severe weather warning & I’m NOT ALLOWED air conditioning. #Abuse

#Abusers will be chilling with air conditioning next door or in their spare room/garage.

I have #POTS #Dysautonomia ~ Cannot regulate body temperature and will be very sick.

Help me escape.
😵‍💫😩 🥵🔥

https://chuffed.org/project/161937-help-anna-escape

Wish me luck.

It was 34°Celsius today.

It’s going to be 44° tomorrow with a severe weather warning & I’m NOT ALLOWED air conditioning. #Abuse

Abusers will have air conditioning next door or in their spare room/garage.

I have #POTS #Dysautonomia - can’t regulate body temperature & am already very sick.

Help me escape.

#MutualAid #HelpFolksLive2026

😵‍💫😩🥵🔥

https://chuffed.org/project/161937-help-anna-escape

Wish me luck.

It was 34°Celsius today.

It will be 44° tomorrow & I’m NOT ALLOWED air conditioning.

#Abusers have air conditioning next door & in their spare room.

I have #POTS #Dysautonomia & can’t regulate body temperature. Will be extremely sick.

Help me escape 🥺🥵🔥

#MutualAidRequest #MutualAid

https://chuffed.org/project/161937-help-anna-escape

New US research that also included a #hEDS comparison group:

Shared autonomic phenotype of long COVID & myalgic encephalomyelitis/chronic fatigue syndrome

Free fulltext
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0341278

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #LongCovid #dysautonomia @mecfs @longcovid @pots

#Neuhier

Ich reise seit 3 Jahren Vollzeit mit meinem Van durch Euro und schicke hier mal ein paar Grüsse aus Portugal zu Euch ☺️

#vanlife #loveyourlife #LongCovid #dysautonomia