Currently in the phase of a #Crohns flare where I'm hungry but eating hurts. Really frustrating.

I've just had to disappoint my doctor's research coordinator by declining to participate in a clinical trial for a new #crohns medication under study.

I'd be willing to participate generally, but the time commitment is just too much. Numerous pre-launch visits, two endoscopies (colonoscopies) and then monthly follow ups for the first three months alone.

Not with a new job, unfortunately.
She was so disappointed when I wound up declining. I'm sure it's hard to find willing and able participants in central PA, though. So I get it.

But it's still a no for me.

I guess since I'm sharing random music today....here's my personal Crohns disease theme song. youtu.be/xDiuSwrRQ4M?... #music #crohns #bobsburgers

"Bad Stuff Happens in the Bath...
"Bad Stuff Happens in the Bathroom" - Bob's Burgers S6E19 (Stuck on the Toilet Song)

YouTube

Winding up missing an important #crohns tele appointment I was literally sitting waiting at my device to attend (for an hour!) because of stupid things really has me very, very annoyed this evening.

#ibd #crohnsDisease

Oooh! I remembered to give myself my dose of #skyrizi today.

Go me!

And that's with post-general-anesthesia brain!

#crohns #CrohnsDisease #IBD

#horse #photography #ileostomylife #MICI #crohns
©️ Nicolas Mouart, 2018-2026

Crohnwarrior, next round: https://de.wikipedia.org/wiki/Risankizumab

  • https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1331217/full
  • https://ascpt.onlinelibrary.wiley.com/doi/full/10.1111/cts.13706

🔗 https://blog.giersig.eu/notes/e1578/

Risankizumab – Wikipedia

I just want to be done with the thing already.

But a few wins:
- Pharmacy had the prep they want me to use, and it wasn't GoLytely
- New healthcare got me my ID card with all the necessary numbers before I headed to the pharmacy to pick up the prep
- I got a morning procedure time slot instead of an afternoon one

#crohns #crohnsDisease #IBD

If you are an #IBD or #IBS sufferer, download my aoo now! It's free for 2 weeks, so you have nothing to lose. I'm an independent developer so every download / sale helps me so please support a fledgling developer.

https://blackmercury.co.uk/ibddiary/

#IBDDiary #Crohns #Colitis #CrohnsAndColitis