Heute Termin Fachambulanz ➡️ 0 Bock

#spoonie #chronicalillness

Ha. I slept seven hours and 20 minutes! Longest sleep since therapy started, so... Since... Mid-November?
Looks like the Prednisone is finally flushed out of my system. Also the blood glucose levels start normalizing...
Now let's see if I feel good enough™ for a concert this Saturday :-) Or perhaps some real-life GTA cosplay without guns but with better music?

https://youtu.be/iMnhNo4SYQc

#smallwins #Prednisone #chronicalillness #punk #BullenwagenKlauen

Fuck! Neurologe so: "He Punk, wir müssen reden, Du musst in Langzeitbehandlung."

Ja, hurra für mich! 🫠💊

Hätte ich 2026 mal eher umgetauscht... Fuck this, ich hol mir nen Döner.

#Hauptgewinn #chronicalillness #multiplesclerosis

Ok even though I took my last Prednisone yesterday, it gave me a huge fuck you farewell; again, only 3h of sleep, resting heart rate of 120 bpm all night (a "paradox side-effect", as it usually cause bradycardia) and a really really bad stomach.

Fuck this, I call in sick. Someone else may take the Hero of Labour medal.

But... Officially the therapy of that suspected 2nd multiple sclerosis flare-up is over. The specialist are still brooding over MRI images (which shown typical lesions in brain and spinal cord), blood- and liquor samples (which show antigenes only found with specific auto immune disorders) and other telling signs.
But from tactical importance: All symptoms from that last flare are gone, now just side-effect management. (I think I will make me a merit badge for that; "15 years of successful medication side-effect management")

But it really looks I won another chronical illness! Dang, epilepsy, cerebral palsy & other weird shit ain't enough, give that slacker something to do! 🤣

#Prednisone #MyBodyIsTryingToKillMe #chronicalillness

Looks like the fallout of Prednisone boost therapy is past the peak of side-effects. But... Went to a professional to get my toenails clipperd, I had an inflammation which did not show! That could've escalated real badly.

But my sleep schedule seems to become better. Had perhaps 6 hours of uninterrupted sleep. Was much shittier the past weeks.

Also fasting glucose level was a fucktastic 69 mg/dL. That is pretty much my "normal" level. I guess that my adrenal glands are finally picking up their work again and starts ignoring the extra Cortisol levels? At least the liver seems to be unimpressed, lol.

My body is not a single organism, it's a fucking committee!!

#MyBodyIsTryingToKillMe #Prednisone #chronicalillness

Menno, die Nacht auf Donnerstag lief so gut, jetzt schon wieder um 0230 und hohem Puls aufgewacht. Nacht damit gelaufen.... Eigentlich sollte das Medikament ja Bradykardie verursachen, aber mein Neurologe grinst nur und sagt, bei mir würde sich halt eine "paradoxe Wirkung" zeigen 🫠

Außerdem wird meine Magenschleimhaut regelrecht zerfressen, trotz Pantoprazol. Wobei ich von 20 mg 1-0-1 nun auf 40 mg 1-0-0 umgestellt habe, einfach weil ich ne Packung 40 mg da habe: Das geht NICHT so gut, am späten Nachmittag beginnt es zu beissen. Das werde ich wieder umstellen...

#Prednisone #sideffects #chronicalillness

Got up at 5 AM. Took a cab to the hospital. Got an MRI. Tried getting home by public transportation, but the outskirts of the blizzard where enough to make me take long detours - with my rollator, on non-accessible tram transport lines.
Already chomped down 10 x 50 mg of Prednisolone. Now a small break as it kills my stomach lining. Next 10 pills in a couple of hours. Sounds nasty? Beats going to the ER to get 1000 mg as an infusion on a Saturday...

#ChronicalIllness

Alles für heute erledigt.
Im Radio plötzlich die Weihnachtsversion von dem, was die weit entfernte Beste "Kopfschuss-Mucke" nennt.
Klagend.
Seelenschwer.
Es schleicht sich in mein Ohr, in mein Herz.
Lässt sorgsam wegsortierte Einsamkeit & Freundschaftstrauer erblühen.
Ach, ach. 😓

#TeamVernunft #spoonie #spooniesLife #chronicalIllness #Einsam