AEBCDec 19, 2024
Do you see colours and shapes that others can’t? You might be experiencing Charles Bonnet Syndrome. Discover more about this intriguing condition and its effects on perception. Read more here: https://wix.to/2LUQYnb #CharlesBonnetSyndrome #VisualPerception #HealthAwareness
Do you have Charles Bonnet Syndrome?

By Ruth BieberDo you see colours, that no one else sees? Do you see geometric shapes, which you cannot explain?  Do you see cartoon-like faces in ostensibly empty rooms?  And have you lost a significant amount of sight? You might be experiencing Charles Bonnet Syndrome, otherwise known as CBS. During the pandemic, the CNIB started offering national Zoom calls of all shapes and sizes. I was surprised to note, that one of these Zoom calls was designed to support people with sight loss, who were ex

AEBC - NATIONAL
Paula GordonJul 30, 2023
For a month or so Mom hasn't volunteered info about visual hallucinations, or maybe they've not been clear to her, but today, she saw a bunch of words: Baldwin earlier; and now, while watching but not really seeing the baseball game on TV: singleton, swindleton (!), yellow, red, mangos (without an E, I asked), greens, pansies, and she still sees Baldwin.
We've been working on vision recently. Did we reconnect something?
#stroke #dementia #ElderCare #OldBrains #CharlesBonnetSyndrome @caregivers
Paula GordonApr 2, 2023

Mom, eating a piece of brownie with a fork, looking at the fork: SANTA
Me: Where do you see that?
Mom: Before CLAUS
Laughter all around.
A few minutes later, Mom, looking at another piece of brownie on her fork, under her breath: santa

* * *
Then taking her pills, with me prompting at each one: Look to your left, do you see it?
Mom: NAG
Me: NAG?!
Mom: There’s an N and a G, so, NAG
Me: Hmmm

#CBS #CharlesBonnetSyndrome #VisualHallucinations #OldOld #ElderCare #RightHemisphereStroke

Paula GordonFeb 21, 2023

Today's words:
ICICLE
FREEDOM

A fair impression of the afternoon. First feeling discouraged, stymied, frozen, stuck in bed. ICICLE.Then PT arrives and we get my mom walking (haltingly) out of the bedroom and to her living room recliner. That's when she sees FREEDOM. Small step forward. Later, tonight's Wingmom* and I get her back to bed.

#Hallucinations #CBS #CharlesBonnetSyndrome #VisualReleaseSyndrome #MacularDegeneration #Stroke #Caregiving #ElderCare #Hemianopsia
*https://www.wingmomde.com/

Home Organization | Wilmington, DE | Wingmom

Wingmom specializes in house organization, senior services, babysitting, and more in Wilmington, DE. Call us at (302) 268-6432 for additional information.

Paula GordonFeb 15, 2023
So, on Jan 22 I was asking about methods of learning braille -- for myself. Nine days later, and my mom has a stroke resulting in vision deficit (but she still has her visual hallucinations). Also on Jan 22, in conversation here about bringing in more caregiving assistance, with reluctance. Now that my mom's out of the hospital, I can't get people here fast enough. #Stroke #ElderCare #Hemianopsia #Adapting #CharlesBonnetSyndrome
OsteoarthriticAutisticJan 25, 2023

The crippling condition which many health experts don’t know about | The Independent
#CharlesBonnetSyndrome
#CBS

Charles Bonnet syndrome (CBS) can cause vivid, and sometimes frightening, visual hallucinations but few health experts are aware of it

https://www.independent.co.uk/news/health/charles-bonnet-syndrome-health-condition-b2267440.html

Charles Bonnet syndrome is the crippling condition which many health experts don’t know about

Charles Bonnet syndrome (CBS) can cause vivid, and sometimes frightening, visual hallucinations but few health experts are aware of it

The Independent
Show threadPaula GordonJan 11, 2023
3/4 BTW, I found a possible medical description of her behavior: Visual release hallucinations aka Charles Bonnet Syndrome
https://en.wikipedia.org/wiki/Visual_release_hallucinations
The article doesn’t mention letters, but says the images are tiny. Today the letters were the size of the holes in a piece of matzo. Approx 1-2 mm in size. Another similarity: my mother has macular degeneration and is functionally blind in her left eye. (Right eye works.)
#CharlesBonnetSyndrome #AMD #OldOld #OldBrains #SeeingThings
Visual release hallucinations - Wikipedia