RobotistryPatient Tips for LC Care Providers:
When a #LongCovid patient says "X makes my long covid symptoms worse,"
DO NOT SAY "What symptoms?"
If we're struggling enough to seek care that won't exacerbate our symptoms, we're carrying lists of 60+ symptoms, one of which is likely to be a combination of cognitive dysfunction and inability to respond to stress.
Asking "What symptoms?" triggers us to (a) forget to mention the important ones like PEM and cognitive impairment and (b) only mention the 3 that come to mind first, missing at least 5 symptoms that are relevant to whatever course of treatment you're about to recommend.
Instead, work through the body, asking what symptoms worsen overall and in each system.
cabot
Richmond Chambers
Joyce Bell 🇺🇦🇨🇦🇲🇽🇬🇱🚫🧊
Jane Townson