The COVID-19
Longhauler Advocacy Project

The COVID-19 Longhauler Advocacy Project is dedicated to supporting those affected by long COVID through comprehensive resources and the latest information. Our new guide, the C19LAP Comprehensive Guide to Long COVID V2 - expanded from our V1 Guide - has been meticulously updated and expanded to ensure it addresses the evolving needs of our community.

#Treatement #C19LAP #LongCovid

https://www.longhauler-advocacy.org/2024cglc

https://83fdfbfe-d01d-4fc1-8c68-86ef6e148cb5.usrfiles.com/ugd/83fdfb_db788a656c024c94842f3b1575d608c8.pdf

Our new #C19LAP Website is live!
https://www.longhauler-advocacy.org

Designed & developed by #Longhaulers, this is the ultimate hub for #LongCOVID awareness, education, and support, packed with comprehensive resources for all w/ even more coming soon! Dive in & spread the word!

Join #C19LAP founder @k_bishof & the National Academies of Sciences, Engineering, and Medicines Committee for the report release webinar "A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequences" on June 11th at 1pm ET.

Register: https://events.nationalacademies.org/42882_06-2024_report-release-webinar-a-long-covid-definition

#C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.

Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
https://sponsored.bostonglobe.com/pfizer/long-covid-dear-scientist/

WHERE ARE THE #PHILANTHROPISTS for #LongCOVID?!

The $ isn’t coming from govt.

We need mass public & clinician education, research, & support. #C19LAP + is eager to lead, but there’s not a soul out there willing to step up for millions w/ #LongCOVID bc of #stigma

#C19LAP member Mindy Jackson & Husband talk with local WA news about her journey with #LongCOVID, the need for more awareness, & #LongCOVIDAwarenessDay.

https://www.nbcrightnow.com/news/how-do-you-know-if-you-have-long-covid/article_6d228564-e8ad-11ee-9040-478b293e67eb.html?fbclid=IwAR1sBNVhk1FwAZlbf26R6o0GQJ6Bkx5grScPl0sQUlvaeWLKt14fYMWUIg0_aem_AeS7E0Y0odp4jPElarM_zfg89bPaMCJ-BUi5E0I988Gtz5T6qlgYeYs7COOOzalr594

#C19LAP has been working hard!

Join us tomorrow 3/15 for a pretty amazing announcement on #LongCOVIDAwarenessDay!

Stay tuned & be sure to check in!

We will also be releasing several videos you should definitely check out & share!

#LongCOVIDAD24
longhauler-advocacy.org/longcovidad24

Change your profile picture to raise awareness about #LongCOVID during the week of #LongCOVIDAD24!

Head over to the #C19LAP #LongCOVIDAD24 toolkit to take this action & many others! (scroll to bottom of page) longhauler-advocacy.org/longcovidad24 Be sure to elevate this initiative, share widely & participate in our daily actions!

If you were given the opportunity to send a message to the #medicalcommunity about #LongCOVID, but only had 1-2 sentences to do it, what would your message be?

Action: https://docs.google.com/forms/d/e/1FAIpQLScIAqeAFGgy51wxKMSuO7jkHQjrZ2LcORpNfyBrJFemo3JSjQ/viewform

Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24

What would #LongCOVID obtaining sufficient, long-term funding mean for you, your family, your patients, and beyond?

Action: https://docs.google.com/forms/d/e/1FAIpQLScFFcakAJOUTGwGKBejBdtLi_nY7DyCG287U_vAb774fry91g/viewform

Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24