genXcrone (she/her)Hopefully #1 will be all over by, say, 4pm tomorrow. Get that Briumvi in me!
Here's where we are today. United Healthcare has refused to pay for my initial Briumvi treatment that took place on May 23, 2023. In six days it will be one year without payment.
I sent this:
[I have questions for and about the medical team doing this review.
Why is this, the first treatment I had, continuously being rejected while the treatments after it have been paid? How does this make sense?
What are the qualifications of this medical team. I would like names, specialties, and any board certifications they possess. If they are not specialists in Multiple Sclerosis I want to know why they are considered able to judge what treatments a patient with Multiple Sclerosis requires.
I have been patient for a very long time. As one year without payment approaches I am becoming less happy and less willing to keep this private.]
LilaAlso, ab morgen keine Tabletten mehr. Gibt es hier wen mit Interesse an meinen #Ponvory Resten. Sie fliegen sonst weg, wäre irgendwie schade drum.
In 3 Wochen dann wird entschieden für #Ocrevus #Kesimpta oder #Briumvi. Gibt es hier Menschen mit Erfahrungen dazu? Allgemeines Infomaterial habe ich und kann auch dann nochmal alles nachfragen. Da antwortet dann nur eben eine Ärztin und kein Patienty.
Theoretisch steht auch Tysabri zur Auswahl, aber nein danke.
It's Briumvi day.
My neurologist's office, where I will be given this immunosuppressive medication, has long since stopped masking.
About that Briumvi...
I just bed-danced for two songs, a thing I have not been able to do for probably close to a decade. My muscles got sore, but my body did not give out. I'm going to try not to overdo it, but this is so exciting.
I had a lot of IV steroids today. I'm tired and I hurt but there is no way I'm sleeping. I've got that Tigger energy.
I'm starting my new MS med on Wednesday. It's going to be 5+ hours, so I'm nervous. As my Neuro said, that's going to be difficult for me. There's an office recliner for IVs, so I'm hoping I get it (already asked), otherwise, I'm going to be in huge pain all day.
I'm packing drinks and snacks, which is going to require mask removal. I'm not thrilled about that part. I'll use the straw seal on an N95 for the drinking.
I think I'm also bringing a light blanket and a pillow. And a spare charger with wall plug, phone, tablet (for comics), and my kindle. If I can find earbuds or if I'm in the room alone as usual, I can watch tv.
Cannabis is going to be an issue. I'll have to start edibles early and keep going.