Mastodawn

A while ago I wrote and shared a poem about the gradual hearing loss I am experiencing. For the past couple of weeks I've been having episodes of sudden deafness in my right ear that last for a few hours. This morning at 5 am, I woke up from a nightmare caused by pain in my right ear. I dreamt that someone was firing a gun very close to my ear (something that actually happened 40 years ago when I was in the army, an accident). The scream scared my wife and I couldn't go back to sleep. I had to take painkillers and my wife is going to buy antibiotics because this is an ear infection.
What's the point of this story? It's precisely the slow and inevitable process of total hearing loss in an autoimmune disease. I know I'm going to go completely deaf, I have no doubt about it. And I'm mentally prepared for that. But it still feels like a loss. And it's not easy...
#hearingloss #autoimmunedisease #otitis #actuallyautistic #neurodivergent

David 3d ago

A new experimental treatment has shown promise in putting lupus into remission in early UK trials, offering hope for patients with the autoimmune disease 📊. The innovative approach involves resetting the immune system and has shown significant improvement in patients, including one who has seen a major improvement in her condition since undergoing treatment 💡.

#DiscoverHeadlines #LupusTreatment #AutoimmuneDisease...

Experimental Lupus Treatment Shows Promise

Discover Headlines

Rhyothemis 3d ago

Identifying immunostimulatory herbal supplements that may flare autoimmune skin diseases: a systematic scoping review [2025]
https://doi.org/10.1136/lupus-2025-001803

"Applying our predefined criteria, we identified a cohort of 15 herbs with the most substantial evidence for immune stimulation, characterised by numerous supporting references across in vitro, model organism and human/clinical studies. These included alfalfa, ashwagandha, astragalus, chlorella, echinacea, garlic, ginseng, green tea extract, Indian mulberry, liquorice, mistletoe, reishi mushroom, skullcap, spirulina and tinospora. Online supplemental material 3 summarises the common and botanical names for these 15 herbs, evidence for their immunostimulatory properties, the types of products in which they are commonly found and how they are marketed. "

Online supplemental material 3:
https://lupus.bmj.com/content/lupusscimed/12/2/e001803/DC3/embed/inline-supplementary-material-3.pdf

#AutoimmuneDisease #autoimmunity #supplements #NaturalProducts

Identifying immunostimulatory herbal supplements that may flare autoimmune skin diseases: a systematic scoping review

Objective To systematically identify herbal supplements with immunostimulatory properties that may trigger or exacerbate autoimmune skin diseases.Methods We conducted a systematic scoping review in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews guidelines. PubMed was searched for studies published before 3 August 2025 using predefined immune, herbal supplement, autoimmune, skin and interferon terms. Articles in English that described immunostimulatory effects of herbal supplements in vitro, in model organisms or in human/clinical studies were included. Data were extracted by four reviewers and synthesised qualitatively, with herbs categorised according to levels of supporting evidence for their immunostimulatory properties. A subgroup of herbs with the strongest evidence was identified based on predefined criteria.Results From 11 819 unique articles screened, 469 studies met inclusion criteria. Across these, 227 distinct immunostimulatory herbal supplements were identified: 79 supported by human studies, 145 by model organism studies and 148 by in vitro studies. 15 herbs demonstrated the most robust evidence across all three evidence types, supported by more than five single-ingredient studies or more than 25 references overall. These included alfalfa, ashwagandha, astragalus, chlorella, echinacea, garlic, ginseng, green tea extract, Indian mulberry, liquorice, mistletoe, reishi mushroom, skullcap, spirulina and tinospora. These herbs were widely marketed for ‘immune support’ and shared proinflammatory mechanisms, including toll-like receptor activation, NF-κB/MAPK signalling and increased production of inflammatory cytokines including IL-1β, IL-6, TNF-α, IL-12 and IFN-γ.Conclusions We identified 227 herbal supplements with immunostimulatory properties, of which 15 were most strongly supported by the evidence. This article may serve as a reference to help clinicians counsel patients with autoimmune skin diseases on the risks associated with use of specific herbal supplements.

Lupus Science & Medicine

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Biohacking Pathway 5d ago

#HashimotosThyroiditis #AutoimmuneDisease #ChineseMedicine #Hypothyroidism #QiAndYang #SelfCare #Wellness #emotionalwellbeing #wellnesslifestyle #wellnesswarrior #healthandwellbeing #wellnessgoals #wellnessadvocate #Health #ThyroidHealth #AlternativeMedicine https://mastodon.social/@biohackingpathway/116729060713768992

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ferricoxide Jun 7

One of the down sides of an #autoimmuneDisease is that the #COVID jab's provocation of an immune response means that, when that response kicks in, it brings a surge of your autoimmune disease's symptoms with it. For me, since my disease is a soft-tissue #arthritis, that means body-wide pain starting 12-24 hours after the injection and lasting 18-36 hours.

All of which is to say, "ouch" since about 0330 this morning. Also means I didn't get much sleep and the sleep I got was light, poor and of short duration.

That my disease is treated (slowed down) with an immune suppressant means I need to keep up to date with immunizations.

I had the original strain of COVID back in spring of 2020. it was three weeks of hell where I kept wondering if I was going to have to join the lines at the ER and wondering whether the high doses of fever controlling meds were going to destroy my liver.

martincidmag Jun 2

One year of a drug delayed rheumatoid arthritis for four years in at-risk patients

https://www.martincid.com/science/abatacept-delays-rheumatoid-arthritis-four-years-2/

#ClinicalTrial #AutoimmuneDisease #RheumatoidArthritis

One year of a drug delayed rheumatoid arthritis for four years in at-risk patients

The people in this trial were not sick yet. They carried the warning signs of rheumatoid arthritis but none of the damage. One year of an immune-calming drug he

Martin Cid Magazine

SCAB Pharmacy Limited May 20

𝗪𝗼𝗿𝗹𝗱 𝗔𝘂𝘁𝗼𝗶𝗺𝗺𝘂𝗻𝗲 𝗔𝗿𝘁𝗵𝗿𝗶𝘁𝗶𝘀 𝗗𝗮𝘆 𝟮𝟬𝟮𝟱: 𝗥𝗮𝗶𝘀𝗲 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀, 𝗦𝘂𝗽𝗽𝗼𝗿𝘁 𝗣𝗮𝘁𝗶𝗲𝗻𝘁𝘀

May 20th marks 𝗪𝗼𝗿𝗹𝗱 𝗔𝘂𝘁𝗼𝗶𝗺𝗺𝘂𝗻𝗲 𝗔𝗿𝘁𝗵𝗿𝗶𝘁𝗶𝘀 𝗗𝗮𝘆, a vital moment to understand autoimmune arthritis—a group of chronic diseases where the immune system attacks healthy joints and tissues, causing pain, swelling, stiffness, and potential joint damage.

𝗪𝗵𝗮𝘁 𝗬𝗼𝘂 𝗦𝗵𝗼𝘂𝗹𝗱 𝗞𝗻𝗼𝘄:
- Autoimmune arthritis includes conditions like Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis, and Reactive Arthritis.
- Symptoms often include morning stiffness lasting over an hour, persistent joint pain, swelling, fatigue, and sometimes rashes or nail changes.
- Early diagnosis through blood tests and imaging is crucial for effective management.
- Treatment options include DMARDs, biologics, NSAIDs, corticosteroids, physiotherapy, and sometimes surgery.
- Lifestyle changes such as regular low-impact exercise, maintaining healthy weight, stress management, and a balanced diet help improve quality of life.

𝗪𝗵𝘆 𝗜𝘁 𝗠𝗮𝘁𝘁𝗲𝗿𝘀:
Autoimmune arthritis affects millions globally but remains misunderstood. Raising awareness leads to early diagnosis and better treatment outcomes. Together, we can support patients and push for more research.

𝗝𝗼𝗶𝗻 𝘁𝗵𝗲 𝗰𝗼𝗻𝘃𝗲𝗿𝘀𝗮𝘁𝗶𝗼𝗻 𝗮𝗻𝗱 𝘀𝗽𝗿𝗲𝗮𝗱 𝗮𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀!
#WorldAutoimmuneArthritisDay #AutoimmuneArthritis #RheumatoidArthritis #PsoriaticArthritis #ChronicIllnessAwareness #JointHealth #InflammatoryArthritis #AutoimmuneDisease #PainManagement #HealthEducation #SupportAndAwareness #SCABPharmacy

Rhyothemis May 12

RE: https://biologists.social/@biorxivpreprint/116562497726010094

Pre-print on study using mouse model of lupus

#AutoimmuneDisease #NaturalProducts #GutMicrobiome #UrolithinA #Lupus

All Scientifical May 11

Can lupus cause kidney problems? #lupus #kidneydisease #autoimmunedisease #kidneyhealth ... Continue to: https://www.facebook.com/reel/1365401842076946/

KillBait News May 11

Advocates Urge Stronger Awareness and Support for Lupus Patients in Nigeria

📰 Original title: World Lupus Day: Stakeholders seek improved care

🤖 IA: It's not clickbait ✅
👥 Users: It's not clickbait ✅

View full AI summary: https://killbait.com/en/advocates-urge-stronger-awareness-and-support-for-lupus-patients-in-nigeria/?redirpost=883069c3-1489-4b78-bdc8-63b4364bb276&utm_source=mastodon_world&utm_medium=social&utm_campaign=killbait

#health #lupus #autoimmunedisease #healthcare

Advocates Urge Stronger Awareness and Support for Lupus Patients in Nigeria

On World Lupus Day 2026, stakeholders, health experts, and lupus patients in Abuja, Nigeria, called for increased awareness, better diagnosis, financial support, and improved healthcare services for…

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