Mastodawn

As part of the discussion Prof Avery has invited Alan Griffiths - who has multiple long term conditions and who takes 14 pills per day. He talks about how these define him (or not) and which elements are the most challenging.

“It’s not the conditions that are the hardest part, it’s what I have to do to manage all of them, every day. Especially through some of the hardest times in my life.”

Our last speaker in this session is Krish Nirantharakumar Co-PI Optimal at the University of Birmingham. His talk is focused on Utilising an informatics consult to improve prescribing.

His team are building tools to visualise and analyse the prescribing of multiple long term conditions. The tool can also start to predict what conditions might emerge over time!

@drandrewv2 that’s exactly what our #ExpertsByLivedExperience tell us and others. It’s SO EXHAUSTING to try to navigate the health care system. The most vulnerable fall through the gaps!

I’m so sorry that you had that experience (even if it is so terribly common). Sending big hugs and well done persevering so long! ❤️❤️

Mike Barnes of Queen Mary University is having us ponder even how you define something like a “long term prescription”? What is long? What if someone switches medications? How long a gap is enough to note?

The AI-Multiply team are taking a longitudinal approach and using #AI and data science tools to follow prescribing data over time for individuals and then summarising them across cohorts.

Our next speaker Lauren Walker, Co-PI DynAIRx is presenting on “Using real world data to identify and plan interventions to minimise polypharmacy and transform prescribing in multiple long term conditions”

The team have been engaging with clinicians to ask what AI tools would be useful for them? They all emphasised the importance of transparency in how any tool makes its recommendation / decision.

There are multiple dimensions of challenge if you live with #MLTC and we are now turning to a deep dive into one of them: #polypharmacy - taking multiple medications for those multiple conditions.

We’re honoured to have Prof Tony Avery who is the National Clinical Director for Prescribing for NHS England chair the discussion and present an introduction including recommendations for systematic and cultural improvements within the NHS.

We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.

Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data

They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.

Next up is Jane McDermott from the NIHR Policy Research Programme Policy Research Unit in Healthy Ageing at the University of Manchester.

Her talk is titled “Raising the Bar in Policy Research - Lessons learnt from the NIHR Policy Research Unit in Health Ageing”

She’s sharing the broad network of stakeholders who feed into policy research, and #mobilising #knowledge as a pathway for #scaling #impact.

Hajira Dambha-Miller is presenting her team’s work on “Understanding the impact of multimorbidity and social care needs in England and Wales from the Cluster - AIM study”.

She opens her talk sharing the story of a patient of hers (she’s a GP as well as a research scientist) whose social care challenges outweigh and exacerbate her physical and mental health challenges. We must understand the social context of the people living with #MLTC.